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Understanding the lived experiences of individuals with functional neurological disorders (FND) in Australia

Omid Rezaei & Mandy Stanley  

Disability and Rehabilitation (2025)  

  • Clinical Study, Research Translation

Key Takeaways

  • People with FND in Australia face daily life challenges due to their symptoms.  
  • The journey to getting a diagnosis can be long and frustrating.  
  • Accessing healthcare in regional areas can be difficult for those with FND.  
  • Addressing stigma about FND can improve the quality of care.  
  • More tailored support services are needed to help those with FND live better lives.

Overview

This study explores what life is like for people with Functional Neurological Disorder (FND) in Australia. It looks at their daily challenges, particularly how they interact with healthcare and access services. The research is significant because it provides insights into the FND experience within the context of the Australian healthcare system.

Discussion

The study conducted interviews with 11 individuals diagnosed with FND using a qualitative approach to gain insights into their experiences.

Themes Identified:  

    • Daily life disruptions due to FND symptoms.  
    • Long and frustrating journeys to get a proper diagnosis.  
    • Difficulty in accessing healthcare services, especially in rural areas.  
    • Misunderstandings and stigma related to FND in society.  
    • Financial difficulties due to unstable employment.  

Interventions Used: Interviews were used to gather personal stories from participants.

Outcomes Measured: Key challenges affecting individuals’ lives were identified and categorized into themes.

Improvements Found: There is a need for better-trained healthcare professionals and a supportive healthcare system understanding FND.

Limitations and Future Considerations: The study was limited by its sample size and geographic focus. More research is needed to explore these issues in other regions and healthcare settings.

Next Steps

If you have FND, here are some steps you can consider:

  • Educate yourself about FND to better advocate for your needs.
  • Talk to your healthcare provider about tailored rehabilitation programs for FND.
  • Track your symptoms to notice any patterns or triggers.
  • Connect with others in the FND community for support and shared experiences.
  • Remember, there is hope. Advocacy and awareness are growing for better support and understanding of FND.

Reference

Rezaei, O., & Stanley, M. Understanding the lived experiences of individuals with functional neurological disorders (FND) in Australia. Disability and Rehabilitation. 2025. doi:10.1080/09638288.2025.2481986  

https://doi.org/10.1080/09638288.2025.2481986

This summary is provided for informational purposes only and does not constitute medical, financial, or legal advice. It is not intended to replace professional consultation or treatment. Always consult qualified healthcare providers regarding your specific circumstances, symptoms, or questions.

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